As Dave Walton, CEO of T1D Exchange says, “You can’t manage what you don’t measure.”
That’s exactly what T1D Exchange is doing … and you can participate, if you live in the US, through their T1D Exchange Registry
The T1D Exchange Registry is striving to become the most comprehensive research study of people with type 1 diabetes in the United States. If you live in the United States and have been diagnosed with type 1 diabetes, or are the parent/guardian of a minor child diagnosed with type 1 diabetes, your participation is needed!
By joining the Registry and sharing your voice, experiences, and data, you will help scientists and medical professionals expand their knowledge of type I diabetes, discover new treatments, and improve existing treatments and methods of care. The evidence collected can also impact policy and insurance coverage changes.
IF you are using a DIY closed loop, here is another survey … the Open Project is gathering data as well!
Loop and Learn visited with Dave Walton to learn more about T1D Exchange … and what a great presentation!
I am delighted to be a member and contributor ( I take the surveys each day) to the T1D exchange. It is a fantastic way to do good in this world.
Agree and also participate in many surveys and studies when they become available. It feels great to contribute in any small way.